Aug 3, 2011

The Patch.

 Well as some you know Aliza has been diagnosed with Infantile Esotropia, which means her eyes are working independently of each other.  They both work, but something in her brain is choosing to ignore input from one eye and she just chooses one to use at at time.  It alternates.  In the picture below, you can kind of see her left eye turning in.


We've only noticed this pretty recently.  Within the last couple of months, it gradually increased to where it is now, which is that she rarely uses them together anymore.  It used to be that she would go in phases of using them together, and then she would slip into just using one of them.

So, after a couple of ophthalmologist appointments here and in Wichita, we are trying to patch her eyes, one at a time, daily.  The hope is that this will somehow trigger something in her brain to start using her eyes together.  The problem with Infantile Esotropia is that no one really knows exactly what causes it, since there are a number of factors that cause one to see how they see.  Thus, there is also not a for sure "fix" for it.  If patching it doesn't work, the next step will most likely be surgery on her eye muscles.  But this, too, may or may not work.  Many people that have this surgery have to repeat it throughout their life.  Not so encouraging.

Honestly I am feeling kind of overwhelmed with thoughts of what this could mean for my sweet daughter's life.  God is gently reminding me that Aliza is His daughter and that He takes care of her; that nothing here is beyond His sovereignty.  But we could sure use your prayers.



~Pray that these cute little patches would work!  That something in her brain would be re-triggered!
~Pray that Nate and I would choose to believe God's goodness and sovereignty and be thankful, even now.
~Pray for wisdom in whether or not to get another opinion and where to go for that.

Pray that this little cutie's eyes would be healed and work together normally!

Thanks all, just thought I would share this with blog-land because I know many of you keep up with our family this way and I wanted to keep you all posted and ask for your prayers!
Thank you!!

10 comments:

  1. Oh my goodness! So cute, yet so sad! I am definitely praying for all of you! Especially little Aliza! Poor baby! Love you guys!

    ReplyDelete
  2. Oh, Erika. I'm sad but trust in God's plan for her. Will be praying for healing through these little patches. Love you and miss seeing your face.

    ReplyDelete
  3. erika...did you go to Dr. Whitfield here in Wichita? He's one of the top ped. opthamologists in wichita. CeCe has had several appointments with him. She has a pretty bad lazy eye and early on the docs thought she also had Esoptropia. I will be praying for Aliza and her vision. Thank goodness NOTHING is out of HIS loving control.

    ReplyDelete
  4. Love the pictures and love that little girl! Those patches are so colorful and that is fun. Love your faith and know God has planned good for Aliza!

    ReplyDelete
  5. Praying for cutie-pie Aliza and all of you!!

    ReplyDelete
  6. Yes, Erika -- praying!

    ReplyDelete
  7. Love you all so much! I'm praying for His peace and His goodness to overwhelm you every time you look at those precious blue eyes!

    ReplyDelete
  8. Praying for you guys...for healing, wise doctors, and for you and Nate to continue to walk forward trusting God.

    ReplyDelete
  9. I will be praying for you guys. This is hard, the uncertainty of what will happen. I am praying this patch will REALLY work. She's super cute wearing it!

    ReplyDelete
  10. Thanks for the update. Love you guys and praying for Aliza.

    ReplyDelete